In June we had the 4D Scan/Echocardiography everything seemed ok until we our saw our doctor after the scan.
She informed us that there was an echo from the left side of the babies heart or left ventricle and that this could be an indication of Down Syndrome. She informed us we need to get a second opinion from Huaxi (West) Hospital within the next two weeks. My wife contacted the hospital, but the next available appointment would be in eight weeks.
If you don’t have any 关系 guanxi (relationship) in China it can really difficult to get anything done medically. Luckily a friend of ours had some contacts in another private hospital in Chengdu. They reviewed the report and said everything was fine and that the Echocardiography results can be very misleading and not to worry and that this happens all the time. I had been really stressed over the first results more than my wife, but after the advice from our friend this gave us a lot of relief.
Stress us out again!
About three weeks ago my wife went for a blood test and general check up at our hospital. The doctor asked about the results from Huaxi. My wife informed our doctor that we got a second opinion from another doctor from a private hospital and that everything was ok. The doctor informed my wife that she wanted her to get this checked out again, because one of her patients had just given birth to a child with Down Syndrome and that we could still abort at week 30. When she told me all this I was angry and upset. How can they expect us to have an abortion at week 30. We came to the conclusion if the baby has DS we don’t care. We can give the baby a good life.
Corrupt Government Hospitals. Return of the Yellow Cow.
We decided to get it checked out at Huaxi Hospital. My wife called the appointments line next available appointment would be at the end of October after the babies birth WTF. So we had to call a yellow cow. A yellow cow is basically someone who can get you an appointment with the doctor via some corrupt channel we had to pay him this time 300rmb bear in mind that this is only an appointment to see the doctor who can authorise a scan.
My wife’s ticket had no number or appointment time that means everybody from the doctor to the person dealing with appointment is corrupt. So we get an appointment to see a doctor my wife went to see the best doctor in Huaxi (allegedly) and informed her of our situation. This so called best doctor just laughed and said to my wife good luck with getting an appointment for a scan.
Again my wife was informed late October for a scan. We contacted our Yellow Cow he informed us he could get us an appointment in two weeks, but it would cost 1500rmb and that he could not guarantee the time.
We decided to find another private hospital in Chengdu to do the scan so two weeks ago we had another echo scan for only 400rmb. There was still an echo from the left side of the heart. The doctor told us not to worry that our hospital was just trying to cover themselves in case the baby had DS. They informed us we could have a DNA test.
Finally some relief
After doing some intense research regarding echo noise from a babies heart there seems to be no definite research or statistics. I even asked the doctor what are the chances of the baby having DS 50% 20% 10% ? The answer was we don’t know.
We had another scan last Thursday 6th August the echo had gone relief all around.
After reading hundreds of posts from parents it seems until somebody does some in-depth research doctors worldwide need to be cautious with the information they give to parents. I understand the hospital is just covering themselves, but really if the percentages are so low or unknown why give any parent this added stress.
To be honest I wish we had never even done an Echocardiography.